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Archive for category Health
All Roads Lead to Briskeby
Posted by Mac in Health, Usher Syndrome, Work on 06.03.2010
In life there’s often places that give you a feeling of deja vu, you keep coming back to them and they have a special importance to you. I would like to talk a little about one place that have, more than anything else, had a profound effect on my life. In fact, everything I do and half the people I know seems to have some connection to it. For instance both my current better half, and also my former, were students at this place. This is kind of ironic, because I remember that when I graduated I did to a certain extent want to distance myself from it, to move on with my life. It wasn’t about dislike or anything like that, but I was ambitious and had very clear ideas of what I wanted to be and do and that was sooo much more than just this. Ah, youthful ignorance and arrogance! Ironically, in retrospect I think the conclusion would have to be that every single one of these grand plans ended up face first on the ground so hard it made the asphalt sing ;) Life! Read the rest of this entry »
Back For Another Round Of Social Pornography
Posted by Mac in Health, Politics, History, Society, Usher Syndrome on 16.01.2010
Lately there’s been an ongoing debate in Norway on the social security system and the various social benefits. This debate seem to pop up every once in a while and is not exactly new under the sun. Living in a more or less free and democratic country it is also necessary, you have to question the validity of your current system and occasionally measure it up . Being young and disabled I am directly or indirectly one of those whose condition and ability are in danger of being discredited and whose living conditions may very well be affected.
I was one of four disabled people featured in an article attempting to give those that is the statistics a face, so to speak. Obviously things don’t get much more public than this and I feel a need to explain some of my personal perspective on the debate. This is not really why this blog exist, but it is the only available and unedited medium I’ve got ready access to and if someone Google my name they are likely to find their way here.
How I Went Through Hell And Got A Few Seconds of TV-Time
Posted by Mac in Health, Politics, History, Society, Usher Syndrome on 26.10.2009
Thursday the 22nd was a bizarre day for me, so unusual I simply have to blog about it now that I’ve had the chance to catch my breath. I ended up on the evening news and surprisingly enough, it wasn’t because I robbed a bank or threw a cake in the face of politician. I got to flash my questionable mug on NRK which is a national, state-owned TV-channel, basically a Norwegian version of BBC. Love it or hate it, the channel and its news is at least classic and not sensationalist tabloidish in style, they seem to try to keep a fragment of integrity and quality even these days. I was interviewed and brief excerpts where used in a case on a just released report on the condition of the social security system and a lot of other things. There where some heavy criticism, and I was apparently chosen to sort of give the victims of the issues at hand a face. Read the rest of this entry »
Suicide – Redemption Or Damnation
Posted by Mac in Featured, Health, Politics, History, Society on 20.11.2008
Loosing a loved one is never easy, be it old age, an accident or because of one of many mortal diseases, it leaves an open space in our hearts and minds. Deaths often leave the bereaved with a feeling of guilt – “I should have done more” – but rarely is this feeling as strong as when someone take their own life. In a religious and legal context, suicide is often considered a sin and even a felony in many countries. With the suicide rates as high as ever before, the phenomenon is of increasingly current interest. It’s a social problem and even described as a public health problem by the WHO. This both because of the emotional damage it causes to those left behind, but also the indirect costs on the national economy and public health services. The amount of failed suicidal attempts is huge, and some many require hospitalization and extensive medical treatment afterwards. Read the rest of this entry »
The Sorrow That is Usher Syndrome
Posted by Mac in Featured, Health, Usher Syndrome on 06.10.2008
I’d like to talk a bit about quite a private subject that I’ve given a lot of thought over the years. In fact, it concerns me in my everyday life. Sorrow, grief and regret. Here’s my take on it.
The single most defining element of my life, is (unfortunately) Usher Syndrome. This extremely rare genetic disease that I suffer from, is a thing that defines me even if I don’t want it to. The day I received the diagnose eventually changed my life forever and also my perception of a great many things. The nature of sorrow is one of them. Read the rest of this entry »




